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Trying to Accept Being Epileptic


I'm finally starting to realize that I have epilepsy.  The seizures are mild but real.  Instead of denying it I have to accept it.  This is the second time that I was not allowed to drive for six months.
So I'll try to get enough sleep, avoid stress and find the right medications.

This past week Lynette made pulled pork in our slow cooker for dinner with some friends.  They loved it.  We both hated it.  Maybe they were just being kind.

Yesterday we saw the movie "Split".  I did not care for it.  It was slow and not realistic.


Afterwards we ate at the Outback restaurant.  We overate steak and a chocolate cake topped with vanilla ice cream!    

Today I had my four hour IVIG treatment.  I took an hour nap, ate a peanut butter sandwich with cranberries in it and searched through the web on my tablet.

I'll try to post more often.

18 comments:

  1. I am so sorry to hear this news John... I wish you the very best 💐

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  2. Acceptance is good, so hopefully you won't be too concerned about your epilepsy now.
    Wise not to drive and the same rule applies down here for epilepsy it's a year without having a seizure though. Makes good sense.
    All the best with it and enjoy what you can do, not what you can't do :)

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    1. Six months is better than a year:) Thanks Margaret

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  3. Acceptance is always best. Once you're stabilized on medication and lifestyle, your epilepsy will just become part of the "wallpaper of your life" -- something in the background, not front and center all the time. Best wishes!

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    1. It does calm me down a bit to accept it. Thanks Debra

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  4. Like Debra says above, at least you know now what is happening with your body and can make the proper adjustments, so to speak with medication and changes with your daily routines.
    Be at peace, my friend!
    Oh and my son went to see La La Land, he didn't like it at first, but said it grew on him. He told me I would hate it and I think he knows me very well!!

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    1. Thanks Kay. And I'll stay away from La La Land.

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  5. I'll just echo what has already been said about being aware and working toward a solution that works for you!

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  6. I know that what Debra says is true, but it is hard to do. I'm dealing with health issues too, and it bothers me to realize that these things will never be gone - I will never return to the fully pain-free and healthy state that I was in just a year ago. I hope to come to acceptance on my own schedule; it might not be as quickly as I'd like, but hopefully I will get there eventually. I hope the same for you.

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    1. I hope you feel better. Thanks for the kind comment.

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  7. I hope they can get your seizures under control. I have been so well controlled for about 40 years as long as I take my medicine. Keep working with the doctor and adjusting medications and dosages. I am always here if you have any questions. I have thoroughly studied epilepsy ao I may have an answer or a source for you.

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    1. I'll keep that in mind. Thanks Emma

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  8. Epilepsy frightens people, tgats why it is a difficult condition to talk about abd to accept i guess.
    Is there a local support group you could access if needed?

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    1. That's a great idea. If I get really down in my mood I can ask my wife Lynette to drive me to a meeting. I'll have to find a group first.

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    2. There are very likely online support groups as well - do a search for your federal epilepsy association and check their website.

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  9. A friend of the family is epileptic ... and works closely with the medical team having quite regular check ups. The medication does have to be altered sometimes but on the whole life goes reasonably smoothly.

    With any medical condition / illness acceptance is so often the first step ... and then onto better things.
    Staying positive can also help.

    I do think if you can talk, exchange views with fellow epileptics this could be useful.

    Thinking of you and sending my good wishes

    All the best Jan

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I enjoy reading your comments.
I'll visit your blog.

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