Skip to main content
Started Self-Administration of Subcutaneous Immune Globulin This Week
I usually go to the hospital for a four hour IV of Immune Globulin every six weeks to treat my neuromuscular disorder, CIDP (Chronic inflammatory demyelinating polyneuropathy). Now I"ll try injecting myself once a week subcutaneously for about two and a half hours, which should be safer than an IV. Instead of a large needle in a vein I'll have four tiny insulin sized needles in a fatty area of the skin.
I'll be able to walk around while wearing the needles and pump. It will also level out the doses. I pasted some information below.
CIDP is:
Mine affects both my lower legs and causes me to have many falls and makes it difficult to walk, especially without my leg braces. Right now I'm using a wheelchair and working my way up to a walker.
The medication is called Hizentra:
Mine is with four needles and it will take a few times for a nurse to show me before I'm comfortable with doing it myself.
New Posts from Blogger Friends
-
Friday Observations
-
It’s Friday and it’s trying to be sunny. The Welsh are quiet today after
their walk and *Roger *is sat in my bedroom window watching the grave
digger and ...
31 minutes ago
-
MIss Cellania's Links
-
Disney Parks Will Offer a Weird Lineup of *Star Wars* Food Beginning May 4.
There's also an additional lineup of food items that will only be available fr...
39 minutes ago
-
Blasphemy!
-
But . . . but . . . my buddy Jesus
laughs at these as much as anyone!
1 hour ago
-
The 10 Weirdest Materials That Can Be Used to Make Paper
-
In a world where innovation intersects with tradition, the art of
papermaking undergoes a curious transformation, venturing beyond the realm
of conventio...
4 hours ago
-
-
"in a brief moment of sunshine"
-
A short post today 😊
We have been fortunate to enjoy a few sunnier days.
The garden birds have certainly been happy about it,
and it's been lovely to lis...
12 hours ago
-
Don’t Worry, Gen Z, Your Face Isn’t Aging Faster Than Others
-
Some members of Generation Z are worried they are aging more quickly,
thanks to social media influencers selling products. But skin care experts
said the c...
16 hours ago
-
-
Long, long ago.
-
I've just had a birthday, yes, I'm a Taurus! Next year it a really big
birthday, hopefully I'll get there, I intend to 😊.
So many moons ago in fact not l...
21 hours ago
-
A Needed Separation
-
I have been trying to share a lot how meditation switched my mindset from
confused and blur to clear and transparent state throughout the years. I
feel...
1 day ago
-
a really good movie... and a gift?
-
This is an old movie, but one we love... and this speech given was great.
There are so many movies out there that are so-so, but this is one of t...
2 days ago
-
Sew Sew
-
I do not sew. When I was a child my mother taught me to do embroidery
which I also cannot do.
We had a sewing machine. It was the old kind operated by a...
4 days ago
-
Glossolalia (Not Just Gibberish)
-
Guess what, our son has just written a piece about music on a site called
"Audio Phix! Yes! Now, I'm I being terrible if I ask you to look at it
and r...
1 week ago
-
Light at the End of the Tunnel
-
Following an assessment ten days ago, my mother's geriatrician has finally
agreed to sign a form stating that she no longer has the capacity to make
her ...
1 month ago
-
Chuckles and Chortles
-
Happy Tuesday, friends! I hope you're all doing well. What's going on with
everyone? What's new in your world? Share in the comments. I'd like to hear
all ...
11 months ago
-
-
Quando meno te l'aspetti... la Natura ti ricorda chi sei...
2 years ago
-
Capri view
-
vista su Capri
sullo sfondo la penisola Sorrentina
Giugno 2015
8 years ago
-
Time-Out
-
Every now and again in life we come across a bump or hurdle. It can come in
our relationships, our finances or as in my case, health.
Right now I've been...
10 years ago
Good luck with that, John. I hope it does the job for you. Do I understand that you'll be doing it at home? If so, that will be more comfortable than going to the hospital, on top of the other benefits you mentioned.
ReplyDeleteI'll be mentioning this to my cousin who has CIDP; she has weekly IV treatments so she may not be a candidate but it never hurts to ask.
I hope it could work for her. I'm just starting mine so I'm not sure yet.
DeleteYou are so much braver than I am. Needles or anything else puncturing skin is something I can't deal with.
ReplyDeleteI'll give it a try. Hopefully it will be easier than an IV.
DeleteI hope it works well for you! Being at home is always more comfortable.
ReplyDeleteThanks Martha. I'll try it.
DeleteWell, you are a very good DIY kind of guy! As Martha says above , I also hope this will work well for you. When I typed DIY it changed it to FIT! So remember you are a FIT guy!!
ReplyDeleteThanks for the compliments Kay.
Deletedear John missed reading you!
ReplyDeletei think it is so brave of you my friend and i am sure it will be easier than taking it from nurse
i saw hubby doing this for two years while he was on treatment of hepatitis and believe me it was not as esy as you see in the video
Thank you my friend. I hope it works out.
DeleteThanks for sharing this with us John, I hope it works well for you.
ReplyDeleteMy good wishes
All the best Jan
Thank you Jan
DeleteYou’re going through a lot of pain. It’s obvious. How you can remember the name amazes me. The hard work you go through is something I take my hat off for.
ReplyDeleteThank you Terry.
Delete