Skip to main content
Started Self-Administration of Subcutaneous Immune Globulin This Week
I usually go to the hospital for a four hour IV of Immune Globulin every six weeks to treat my neuromuscular disorder, CIDP (Chronic inflammatory demyelinating polyneuropathy). Now I"ll try injecting myself once a week subcutaneously for about two and a half hours, which should be safer than an IV. Instead of a large needle in a vein I'll have four tiny insulin sized needles in a fatty area of the skin.
I'll be able to walk around while wearing the needles and pump. It will also level out the doses. I pasted some information below.
CIDP is:
Mine affects both my lower legs and causes me to have many falls and makes it difficult to walk, especially without my leg braces. Right now I'm using a wheelchair and working my way up to a walker.
The medication is called Hizentra:
Mine is with four needles and it will take a few times for a nurse to show me before I'm comfortable with doing it myself.
New Posts from Blogger Friends
-
Giant Pumpkin Tribute 2025 - Part Two - The World Record
-
*Twins squash world record for biggest pumpkin*
*Brothers Ian (left) and Stuart Paton with the giant pumpkin*
Twin brothers have broken two world record...
1 hour ago
-
Finding Your Hotel Room
-
We've all been there. You're in an unfamiliar city, your hotel is much
bigger than you're used to, and you've been drinking. Sounds like a good
time, ac...
2 hours ago
-
Peace, Love and Understanding
-
I wish we lived in a world where a person would find a butterfly with a
broken wing and take it to an animal rescue center for help. Oh wait, we
...
6 hours ago
-
-
Mindful
-
A common theme in counselling is wellbeing and wellness. Helping the
client to recognise strategies and mechanisms that enhance the nurturing of
self.
To ...
14 hours ago
-
Dior Street
-
17 hours ago
-
10 Surprising Ways Game Theory Rules Your Daily Life
-
Every day, we perform tiny rituals, make awkward choices, and engage in
behaviors that seem completely normal—until you step back and realize
they’re sec...
17 hours ago
-
Simplicity, Joy, Treasure and Celebrate Each Year
-
Hello dear friends and fellow bloggers! A very warm welcome to you all!
Thank you so much for taking time to come and visit me here!
Here are today's pic...
1 day ago
-
-
Freedom ! A poem by Me
-
He was weird he was strange
Tried hard though couldn’t change
His stupid habit of loving all
Without boundaries
Without man made wall
Some...
2 days ago
-
Queen
-
My oldest son is a loyal fan of the musical group Queen. He can tell me
almost anything I wish to know about them.
Unfortunately he was too young to go t...
2 days ago
-
Sunset at Ballina, NSW
-
On the home front here in Launceston, Tasmania there has been very strong
winds and rain. Two people from the same family were standing outside in a
pad...
4 days ago
-
Saturday thoughts...
-
I found this pic on the internet, but DH actually saw a *white crow *one
day when he was pulling in the drive. I watched for days, but if it was
there,...
5 days ago
-
In Memory of Blogger Sue
-
Today I am mourning fellow blogger Sue from Elephant's Child.
Our first contact was sometime prior to 2013, on a blog that has been
dormant for many yea...
2 weeks ago
-
Chuckles and Chortles
-
Happy Tuesday, friends! I hope you're all doing well. What's going on with
everyone? What's new in your world? Share in the comments. I'd like to hear
all ...
2 years ago
-
-
Capri view
-
vista su Capri
sullo sfondo la penisola Sorrentina
Giugno 2015
9 years ago
-
Time-Out
-
Every now and again in life we come across a bump or hurdle. It can come in
our relationships, our finances or as in my case, health.
Right now I've been...
11 years ago
-
-
Good luck with that, John. I hope it does the job for you. Do I understand that you'll be doing it at home? If so, that will be more comfortable than going to the hospital, on top of the other benefits you mentioned.
ReplyDeleteI'll be mentioning this to my cousin who has CIDP; she has weekly IV treatments so she may not be a candidate but it never hurts to ask.
I hope it could work for her. I'm just starting mine so I'm not sure yet.
DeleteYou are so much braver than I am. Needles or anything else puncturing skin is something I can't deal with.
ReplyDeleteI'll give it a try. Hopefully it will be easier than an IV.
DeleteI hope it works well for you! Being at home is always more comfortable.
ReplyDeleteThanks Martha. I'll try it.
DeleteWell, you are a very good DIY kind of guy! As Martha says above , I also hope this will work well for you. When I typed DIY it changed it to FIT! So remember you are a FIT guy!!
ReplyDeleteThanks for the compliments Kay.
Deletedear John missed reading you!
ReplyDeletei think it is so brave of you my friend and i am sure it will be easier than taking it from nurse
i saw hubby doing this for two years while he was on treatment of hepatitis and believe me it was not as esy as you see in the video
Thank you my friend. I hope it works out.
DeleteThanks for sharing this with us John, I hope it works well for you.
ReplyDeleteMy good wishes
All the best Jan
Thank you Jan
DeleteYou’re going through a lot of pain. It’s obvious. How you can remember the name amazes me. The hard work you go through is something I take my hat off for.
ReplyDeleteThank you Terry.
Delete