Our daughter Laurissa is coming down from Brooklyn to visit us tomorrow or Friday. We'll get to see our grandchildren again, Miles and Evey. Son-in-law Ryan will take turns with Laurissa driving the six hour trip.
I was hoping to give myself the weekly three hour injection of Hizentra today before they got here; don't want to scare the grandchildren with the four injection site tubing coming from my abdomen. They're only subcutaneous but it might be frightening for them. It would seem strange to hide in another room.
The delivery of the medication and injection tubing never arrived today. There was a mix up by FedEx. The package should be here tomorrow. I have a dentist appointment at 1:30 but there should be enough time to finish the injection before they get here.
Just in case you want to see details I have these two videos.
The first is a video with instructions. I use more; four sites and three syringe-fulls. There is no pain involved except for the tape pulling on my tummy hairs when I'm done.
The second video is about CIDP. I use the newer subcutaneous injection instead of intravenous. I can do it at home each week instead of at the hospital infusion center every six weeks. The weekly injections allow for a more steady level of treatment.
We'll be celebrating Miles' birthday. It'll be great to see Miles and his sister Evey again.
I wish we lived closer.